We are pleased to announce the launch of HHT Connect, the Global HHT Patient Registry!
HHT Connect creates a platform for patients around the world to strengthen their voices and share information about HHT (Hereditary Hemorrhagic Telangiectasia). HHT is a genetic, multi-organ, chronic disease that is caused by abnormal blood vessels that can cause severe bleeding, anemia/iron deficiency, and life-threatening AVMs (arteriovenous malformations) in the lungs, brain, and liver. HHT currently has no FDA-approved treatments. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve HHT patient care. We invite individuals with HHT to join now and tell your story!
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