HHT Connect
The Global HHT Patient Registry
Bringing the HHT community together to build knowledge, improve care, and accelerate cures.
HHT Connect collects and combines health information from individuals with HHT (Hereditary Hemorrhagic Telangiectasia) to build a stronger HHT network and unlock a better understanding of the disease. Join NOW to share your story!
For more information about how to register, click here.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.